Collaborating to make traumatic stress
research data “FAIR”
The FAIR Guiding Principles for scientific data stewardship state that data should be Findable, Accessible, Inter-operable, and Re-usable (FAIR). These principles are part of the growing movement toward more open and transparent science. Making traumatic stress research data more FAIR can promote better science, enhance understanding of trauma impact and recovery, and ultimately benefit trauma-exposed individuals and communities around the world. But to date most traumatic stress studies have not been designed with data preservation, sharing, or re-use in mind. Projects in this theme will create resources that can facilitate FAIR data across the field of traumatic stress studies.
1. FINDABLE TRAUMA DATA
Indexing traumatic stress datasets and data resources around the world
Can we make traumatic stress data more findable? This project will take a first step in that direction by indexing available data sets/data resources/collections of studies or resources about potentially traumatic experiences and consequences of those experiences, around the world. We plan to make it a visible, accessible, and useful product online via the Global Collaboration, for all our colleagues around the world. We wish to go beyond the people we know in the traumatic stress field, and beyond the obvious resources: Broadening our horizons, thinking across fields and disciplines. We want to reach good coverage around the world - geographic, underrepresented, different types of trauma and different types of people. Suggestions welcome.
Please complete this form to tell us about data resources we should know about, or contact project leaders.
2. REUSABLE TRAUMA DATA
Describing and harmonizing traumatic stress studies and data
“Sharing data is not enough - data need to tell their stories.” Reusability depends on good metadata about studies and data, but the traumatic stress field does not yet have a common way of categorizing and tagging concepts and variables. This project will build on existing efforts to use metadata to characterize traumatic stress research data across multiple studies, countries, and languages. The project will focus on two key aspects of data reusability: (a) metadata and ontologies for traumatic stress research data, and (b) approaches to data harmonization.
3. CHILD TRAUMA DATA
Sustaining / expanding the Child Trauma Data Archives
An international collaborative group of investigators has created the Prospective studies of Acute Child Trauma & Recovery (PACT/R) Data Archive. See www.childtraumadata.org. Building on this research resource, this project will seek to expand the preservation and re-use of child trauma research data. In 2020, we are beginning the development of an archive of child trauma intervention studies.
Project leader: Nancy Kassam-Adams
4. TRAUMATIC GRIEF DATA
Building an archive for data on adult and childhood grief after traumatic and nontraumatic loss
A group of researchers, based in the Netherlands, has started pooling data from several research programs on grief in adults and in children to build an archive of data that can be used for continuing research on symptoms, course, and correlates of disturbed and nondisturbed grief following traumatic and nontraumatic loss. This project will examine ways to expand this initiative, to enlarge the dataset and to develop options for re-use of these data.
5. TOOLKIT FOR FAIR TRAUMATIC STRESS DATA
Creating a toolkit of resources that can help traumatic stress researchers create datasets that are more FAIR
An international group of researchers will examine the lifecycle of a study, considering the different stages at which FAIR principles can be applied. This project will bring together existing resources, and create new resources if needed, in order to provide an accessible FAIR data toolkit for traumatic stress researchers.
Project leader: Talya Greene