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The FAIR Guiding Principles for scientific data stewardship state that data should be Findable, Accessible, Inter-operable, and Re-usable (FAIR). These principles are part of the growing movement toward more open and transparent science.  Making traumatic stress research data more FAIR can promote better science, enhance understanding of trauma impact and recovery, and ultimately benefit trauma-exposed individuals and communities around the world.  But to date most traumatic stress studies have not been designed with data preservation, sharing, or re-use in mind. See also Kassam-Adams & Olff (2020).

 

Projects in the FAIR Data theme will create resources that can facilitate FAIR data across the field of traumatic stress studies.

Projects span the research data lifecycle.  Our projects are making it easier to FIND and RE-USE traumatic stress data resources, creating ACCESSIBLE data archives focused on traumatic stress research, and building tools to help traumatic stress researchers implement FAIR data practices.

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​BUILDING FAIR DATA TOOLS & INFRASTRUCTURE

 

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1. FINDABLE TRAUMA DATA

Indexing traumatic stress datasets and data resources around the world

Can we make traumatic stress data more findable? As a first step, we are indexing available data sets and data resources about potentially traumatic experiences and consequences of those experiences. Check out the FAIR Datasets index here. 

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How you can help:  Suggestions welcome! Use this form to tell us about data resources we should know about. We aim to include data resources across disciplines, from around the world, about a wide range of types of trauma and outcomes, and we are particularly interested in including research by those who have historically been underrepresented.

Project leaders: Yaara Sadeh & Anna Denejkina

 

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2. TOOLKIT FOR FAIR TRAUMATIC STRESS DATA

Creating a toolkit of resources to help traumatic stress researchers use FAIR data practices

An international group of researchers is identifying FAIR data tools for each part of the lifecycle of a study.  This project will bring together existing resources, and create new resources if needed, to provide an accessible FAIR data toolkit for traumatic stress researchers.

leader: Talya Greene (Israel) & Bryce Hruska (US)

Workgroup: Matthew Price (US), Ateka Contractor (US), Chris Hoeboer (Netherlands)

Check out the FAIR toolkit here. 

 

** NEW TOOL: Check out our Zotero library of FAIR data publications in the traumatic stress field. Tracking FAIR data methods and data re-use in our field. Please send suggestions for any additional references to adamsn@chop.edu   

 

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3. REUSABLE TRAUMA DATA

Describing, organizing, and harmonizing traumatic stress studies and data

“Sharing data is not enough - data need to tell their stories.” This project focuses on key aspects of data reusability: Metadata, ontologies, and harmonization. We are working to better: (a) Describe our data: with metadata for traumatic stress research studies, methods, and variables, (b) Connect our studies and data: developing machine-actionable ontologies and tools to use them, and (c) Develop and share approaches to data harmonization for cross-study analyses.  

Project leaders: Nancy Kassam-Adams & Maya O’Neil

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